Hereditary Leiomyomatosis and Renal Cell Cancer (HLRCC) or Reed’s Syndrome is one of several rare familial syndromes involving kidney cancer. The HLRCC Foundation’s mission is to provide up-to-date information on the disease to patients and their families and also to clinicians as because of its rarity most people are unaware of its existence including clinicians. For updates, follow us on … Read More
HLRCC Quick Facts
HLRCC stands for Hereditary Leiomyomatosis and Renal Cell Cancer (sometimes Carcinoma). It is also known as Reed’s Syndrome. HLRCC is caused by an … Read More
HLRCC: A rare syndrome that causes cancer…Now What?
"Despite the fact that I’ve had the symptoms for more than twenty years, because this is a rare disease, it went undiagnosed. I wanted to share my story so that maybe if someone out there is dealing with this..." Read More
Latest News
When the website for the HLRCC Family Alliance in 2013 was created the domain hlrcc.org was already taken so we went instead for hlrccinfo.org … Read More
Driven to Cure
Bruce Hatch Lee and son Andrew Lee have created Driven to Cure, a 501(c)(3) nonprofit organisation that has raised over $1,000,000 for … Read More
Clinical Trials
The list of clinical trials and studies is constantly changing and people are advised to seek out the latest information from your medical … Read More