HLRCC Family Alliance

Knowledge Saves

  • Home
  • About Us
    • HLRCC Family Alliance
    • VHL UK/Ireland Charity Homepage
    • Driven to Cure
    • Contact Us
    • Medical, Research and Support Council
    • Privacy Policy
    • Disclaimer
  • Information
    • HLRCC Quick Facts
    • HLRCC Brochure
    • HLRCC Handbook
    • Sample Family Letter
    • Clinical Care Centers
    • Science and Research
      • Science on HLRCC
      • Clinical Trials
      • Tissue Bank
      • CGIP Databank
  • News
    • Newsletters
    • Conferences
    • Presentations
    • Videos
  • Join Us
    • Facebook
    • Register with us
    • CGIP Databank
  • Donate

Disclaimer

The content of the website and Handbook should not be taken nor relied upon as medical advice on how to treat your specific manifestation of this condition. Rather, by providing context and understanding, we hope that the information provided will empower the patient to be a better partner in his or her own care and will facilitate constructive conversations between patient and physician. The information provided is intended to add to, not replace, conversations between a patient and a physician, as the specific details and the patient’s total health situation need to be considered in making the final decisions about treatment.

The HLRCC Family Alliance has added a translation feature developed by Google™ Translate to assist website visitors in understanding information on this website in a variety of foreign languages. Please be aware that Google™ Translate, is a free third party service which the HLRCCFA does not control. It provides automated computer translations that may not give you an exact translation all of the time and that NOT all text may be translated correctly or be translated at all. Also please be aware that when a translation is requested, you will be leaving the HLRCCFA website. When a translation is complete, you assume the risk of any inaccuracies, errors or other problems encountered. The HLRCCFA will NOT be held responsible for any damage or issues that may possibly result from using Google™ Translate.

The HLRCCFA cannot guarantee the accuracy of translations through Google™ Translate so translations should not be considered exact and only used as a rough guide. Only the English version has been reviewed and this English version should always be consulted for important information. Anyone relying on information obtained from Google™ Translate does so at his or her own risk. The HLRCCFA disclaims and will not accept any liability for damages or losses of any kind caused by the use of the Google™ Translate feature.

This site complies with the HONcode standard for trustworthy health information - verify here.

VHL Alliance is a NORD member organization

  • Home
  • HLRCC Family Alliance
  • HLRCC Quick Facts
  • News
  • Donate
  • Join Us

Copyright © 2021 · Hereditary Leiomyomatosis and Renal Cell Cancer (HLRCC) Family Alliance - Website upgrade by Pagecrafted