HLRCC Family Alliance

Medical, Research and Support Council

Current Members

Julie Adam, Ph.D., Researcher, Nuffield Department of Medicine, Oxford, UK
Kristiina Aittomäki, M.D., Ph.D., Professor, Head of the Department of Clinical Genetics, HUSLAB ,Helsinki University Hospital, Finland
Andrea Berkemeier, MA, BSE, Director of Engagement and Outreach, VHL Alliance, USA
Gennady Bratslavsky, M.D., Chair of Urology, Upstate Medical Center, Syracuse, NY, USA
Patrick R. Carrington, M.D., Dermatologist and Associate Editor of the Journal of the American Academy of Dermatology, Greenwood Village, CO, USA
Carlos Alberto Fredes, Executive Director of the Argentina Association of Families of Von Hippel-Lindau (VHL-AAF) Argentina
Eyal Gottlieb, BSc., MSc., Ph.D., Research Group Leader, Beatson Institute of Cancer Research, Glasgow, Scotland, UK
Joyce Graff, M.A., Powerful Patient, Inc., Massachusetts, USA
Antony Horton, Ph.D.,Vice Chair HLRCC Family Alliance, previously Chief Scientific Officer at the International Rett Syndrome Foundation, founder and C.E.O. of his own small company PharCited, which provides strategic advice to the biomedical non-profit sector, New York, USA
Bruce H. Lee, Director, Chairman, Treasurer & Secretary of Driven to Cure
W. Marston Linehan, M.D., Chief, Urologic Oncology Branch, National Cancer Institute*, USA
Graham Lovitt, Vice Chair HLRCC Family Alliance, retired software quality assurance manager, software systems designer, Torquay, Devon, UK
Eamonn R Maher M.D., FRCP, FMedSci, Professor of Medical Genetics and Genomic Medicine, University of Cambridge, UK
Fred H. Menko, M.D., Ph.D., Consultant Clinical Geneticist, VU University, Amsterdam, The Netherlands
James W. Mier, M.D., Associate Professor, Department of Medicine, Harvard Medical School, USA
Julie H. Rejman, MSW, Chair of HLRCC Family Alliance, Castle Rock, CO, USA
Stéphane Richard, M.D., Ph.D., Professor of Oncogenetics and Chair, National Expert Centre for Rare Cancers PREDIR, Le Kremlin-Bicêtre, France
Laura S. Schmidt, Ph.D., Urologic Oncology Branch, National Cancer Institute*, USA
Pamela Stratton, M.D., Gynecologist, National Institute of Child Health and Human Development, US-NIH,Bethesda, MD, USA
Sunil Sudarshan, M.D., Assistant Professor UTHSCSA, Urology, San Antonio, TX, USA
Ilene Sussman, Ph.D., Executive Director VHL Alliance, Massachusetts, USA
Min-Han Tan, MBBS FRCP FAMS PhD, CEO and Medical Director of Lucence Diagnostics Pte Ltd.
Ian Tomlinson, BA MA Ph.D. Camb, BM Brist, BM BCh Oxf, Professor of Molecular and Population Genetics, Nuffield Department of Medicine Oxford, UK
Jorge R. Toro, M.D., Investigator, Dermatology Branch, National Cancer Institute*, USA
Ingrid Winship, MB ChB, MD, FRACP, FACD., Professor of Adult Clinical Genetics, University of Melbourne and Royal Melbourne Hospital, Melbourne, Australia
*The National Cancer Institute (US-NCI) is one of the National Institutes of Health (US-NIH), Bethesda, MD, USA

Honorary Members

Although no longer actively involved, in recognition of their contribution to the world of HLRCC the following have kindly agreed to be listed.

Virpi Launonen, Finland, Author of the paper establishing the connection between symptoms of HLRCC and the gene on chromosome 1 (2001)
Phil Thayer, USA, Founder of HLRCC Family Alliance in 2004

Copyright © 2004 - 2017 Hereditary Leiomyomatosis and Renal Cell Cancer (HLRCC)Family Alliance
c/o VHL Alliance, 1208 VFW Parkway // Suite 303, Boston, MA 02132
+1-617-277-5667 ext. 3 or +1-800-767-4845, ext. 3 hlrcc@vhl.org

Last modified: December 13 2017 22:28:36.