HLRCC Family Alliance

Privacy Policy

The HLRCCFA website www.www.hlrccinfo.org subscribes to the principles of HONcode of the international Health on Net Foundation, to assure you of the highest quality of health information.

Medical information on this site is reviewed by our Medical, Research and Support Council.

Information provided on the website is designed to support, not replace, the relationship that exists between a patient or site visitor and his or her physician.

The website does not accept advertising. It is supported solely by donations from people with HLRCC, their friends, their families and supporters, and physicians and researchers interested in HLRCC.

This website is certified by Health On the Net Foundation. Click to verify. This site complies with the HONcode standard for trustworthy health information:
verify here.


Personal details that you provide to the HLRCC Family Alliance, including e-mail addresses, are kept entirely confidential. These details are shared within this organization among staff and volunteers for the purpose of providing service to you, but are never shared with, rented or sold to other organizations. All staff and volunteers have made confidentiality agreements to protect your information. To verify your information or send corrections, please contact us at hlrcc@vhl.org

Information you submit to us voluntarily through the website is stored on our secure server using SSL encryption technology.

Computer Tracking and Cookies

The website is not set up to track, collect or distribute personal information not entered by visitors. Our site logs do generate certain kinds of non-identifying site usage data, such as the number of hits and visits to our sites. This information is used for internal purposes by technical support staff to provide better services to the public and may also be provided to others, but again, the statistics contain no personal information and cannot be used to gather such information.

The website also recognizes the online site where a visitor searched to find a subject which brought them to the HLRCCFA website, but we cannot identify the visitor or the visitor’s address. Site information is used to help us serve these search sites with the correct information about our material. No personal information is collected.

A cookie is a small amount of data that is sent to your browser from a Web server and stored on your computer’s hard drive. HLRCCFA does not use cookies in its web pages. We do not generate personal data, do not read personal data from your machine and do not store any information other than what you voluntarily submit to us.

Problems or Complaints with HLRCCFA Privacy Policy

If you have a complaint about HLRCCFA compliance with this privacy policy, you may contact us at hlrcc@vhl.org.

Links to Third Party Sites

The links included within the service may let you leave this site. The linked sites are not under the control of HLRCC Family Alliance and HLRCCFA is not responsible for the contents of any linked site, or any link contained in a linked site, or any changes or updates to such sites. These links are provided as a convenience only, and the inclusion of any link does not imply endorsement by HLRCCFA of the site or any association with their operators.

If you have technical questions about this site, please contact: hlrcc@vhl.org.

Copyright © 2004 - 2018 Hereditary Leiomyomatosis and Renal Cell Cancer (HLRCC)Family Alliance
c/o VHL Alliance, 1208 VFW Parkway // Suite 303, Boston, MA 02132
+1-617-277-5667 ext. 3 or +1-800-767-4845, ext. 3 hlrcc@vhl.org

Last modified: December 13 2017 22:28:37.