Current Members
Julie Adam, Ph.D., Researcher, Nuffield Department of Medicine, Oxford, UK
Kristiina Aittomäki, M.D., Ph.D., Professor, Head of the Department of Clinical Genetics, HUSLAB ,Helsinki University Hospital, Finland
Gennady Bratslavsky, M.D., Chair of Urology, Upstate Medical Center, Syracuse, NY, USA
Patrick R. Carrington, M.D., Dermatologist and Associate Editor of the Journal of the American Academy of Dermatology, Greenwood Village, CO, USA
Carlos Alberto Fredes, Executive Director of the Argentina Association of Families of Von Hippel-Lindau (VHL-AAF) Argentina
Christian Frezza Ph.D., Programme Leader in Cancer Metabolism, MRC Cancer Unit University of Cambridge, UK
Eyal Gottlieb, BSc., MSc., Ph.D., Research Group Leader, Beatson Institute of Cancer Research, Glasgow, Scotland, UK
Joyce Graff, M.A., Powerful Patient, Inc., Massachusetts, USA
Antony Horton, Ph.D.,Vice Chair HLRCC Foundation, previously Chief Scientific Officer at the International Rett Syndrome Foundation, founder and C.E.O. of his own small company PharCited, which provides strategic advice to the biomedical non-profit sector, New York, USA
W. Marston Linehan, M.D., Chief, Urologic Oncology Branch, National Cancer Institute*, USA
Graham Lovitt, Vice-Chair HLRCC Foundation, retired software quality assurance manager, software systems designer, Liverpool, UK
Eamonn R Maher, M.D., FRCP, FMedSci, Professor of Medical Genetics and Genomic Medicine, University of Cambridge, UK
Joshua Mann,MPH, Director of Engagement and Outreach, VHL Alliance, USA
Fred H. Menko, M.D., Ph.D., Consultant Clinical Geneticist, VU University, Amsterdam, The Netherlands
James W. Mier, M.D., Associate Professor, Department of Medicine, Harvard Medical School, USA
Stéphane Richard, M.D., Ph.D., Professor of Oncogenetics and Chair, National Expert Centre for Rare Cancers PREDIR, Le Kremlin-Bicêtre, France
Laura S. Schmidt, Ph.D., Urologic Oncology Branch, National Cancer Institute*, USA
Pamela Stratton, M.D., Gynecologist, National Institute of Child Health and Human Development, US-NIH,Bethesda, MD, USA
Sunil Sudarshan, M.D., Assistant Professor UTHSCSA, Urology, San Antonio, TX, USA
Min-Han Tan, MBBS FRCP FAMS PhD, CEO and Medical Director of Lucence Diagnostics Pte Ltd.
Ian Tomlinson, BA MA Ph.D. Camb, BM Brist, BM BCh Oxf, Professor of Molecular and Population Genetics, Nuffield Department of Medicine Oxford, UK
Jorge R. Toro, M.D., Investigator, Dermatology Branch, National Cancer Institute*, USA
Ingrid Winship, MB ChB, MD, FRACP, FACD., Professor of Adult Clinical Genetics, University of Melbourne and Royal Melbourne Hospital, Melbourne, Australia
*The National Cancer Institute (US-NCI) is one of the National Institutes of Health (US-NIH), Bethesda, MD, USA
Honorary and Deceased Members
Although no longer actively involved, in recognition of their contribution to the world of HLRCC the following have kindly agreed to be listed.
Virpi Launonen, Finland, Author of the paper establishing the connection between symptoms of HLRCC and the gene on chromosome 1 (2001)
Phil Thayer, USA, Founder of HLRCC Family Alliance in 2004
R.I.P. Dec 2022 – Bruce H. Lee, Director, Chairman, Treasurer & Secretary of Driven to Cure
Last Updated on 15th December 2023 by Graham
