HLRCC Foundation

Knowledge Saves

  • Home
  • About Us
    • HLRCC Foundation
    • VHL UK/Ireland Charity Homepage
    • Driven to Cure
    • Contact Us
    • Medical, Research and Support Council
    • Privacy Policy
    • Disclaimer
  • Information
    • HLRCC Videos
    • HLRCC Quick Facts
    • HLRCC Brochure
    • HLRCC Handbook
    • Sample Family Letter
    • Clinical Care Centers
    • Science and Research
      • Science on HLRCC
      • Clinical Trials
      • Tissue Bank
      • MyVHL: Patient Natural History Study
  • News
  • Join Us
    • Facebook
    • Twitter
    • Register with us
    • MyVHL: Patient Natural History Study
  • Donate

Videos

HLRCC Lectures by  Jason DiCola

These lectures are all uploaded to the YouTube Channel  HLRCC Science

Please click on the Channel Follow and Video Like Buttons

Lecture #1 Understanding How Genes Code for Proteins

Lecture #2 Genetic Mutations Explained

Lecture #3 Why There is a 50/50 Chance of Inheriting HLRCC

How to Make a Family Pedigree: Advice for New HLRCC Patients

The Importance of Fumarate Hydratase in Cellular Metabolism</p

Also has a YouTube Channel Driven To Cure Please Like

Katie Kicks Cancer

These patient videos are all uploaded to the YouTube Channel Katie Kicks Cancer

Please click on the Channel Follow and Video Like Buttons

Stage IV Kidney Cancer

What is a biopsy like for cancer? (Kidney Cancer – Liver & Kidney Biopsy)

What an Open Liver Resection & Nephrectomy (kidney removal) is like

My Stage IV Kidney Cancer Diagnosis Story

 

Stage IV Kidney Cancer The Road to Surgery – Part 1

Stage IV Kidney Cancer The Road to Surgery – Part 2

Podcasts

Deborah Brackin is with Alex Dinh and Melanie Bursack.

Listen to the Powerful Patient on Blog Talk Radio: http://www.blogtalkradio.com/powerful-patient/2014/08/21/learning-more-about-hlrcc

Videos

The Long Road to Understanding Kidney Cancer

Dr Marston Linehan investigates kidney cancer gene pathways to find new treatment strategies.

HLRCC: A rare syndrome that Causes Cancer.

Find out about the condition by listening to our member’s stories:

Despite the fact that I’ve had the symptoms for more than twenty years, because this is a rare disease, it went undiagnosed. I wanted to share my story so that maybe if someone out there is dealing with this, they’ll have the opportunity to catch it before it’s too late.

Last Updated on 23rd March 2022 by Graham

VHL Alliance is a NORD member organization

Last modified: 5th February 2026 @ 2:38 pm
  • Home
  • HLRCC Foundation
  • HLRCC Quick Facts
  • News
  • Donate
  • Join Us

Copyright © 2026 · Hereditary Leiomyomatosis and Renal Cell Cancer (HLRCC) Alliance