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HLRCC Foundation New Domain hlrcc.org

23rd September 2023 By Graham

When the website for the HLRCC Family Alliance in 2013  was created the domain hlrcc.org was already taken so we went instead for hlrccinfo.org .

The HLRCC Foundation found that hlrcc.org was vacant and acquired it.  A new website is now in development at hlrcc.org

Filed Under: Uncategorised

HLRCC Foundation becomes an affiliate partner with the Kidney Cancer Association

9th April 2023 By Graham

We are pleased to announce that we are now an affiliate partner with the Kidney Cancer Association! Together we can better support patients and families impacted by Hereditary Leiomyomatosis and Renal Cell Cancer (HLRCC) syndrome. The KCA’s Affiliate Program brings together like-minded organizations to advocate in partnership for medical advances that improve the lives of people with kidney cancer. HLRCC Foundation joins the Chris “CJ” Johnson Foundation, the Chromophobe and Oncocytic Tumor Alliance (COA), and Joey’s Wings Foundation as an affiliate. We’re excited to be #UnstoppableTogether! KCA Affiliates

Filed Under: Uncategorised

List of HLRCC Experts from Bioinfi

29th November 2022 By Graham

We had an email from Pankaj Agarwal, Ph.D. Founder & CEO of BioInfi.com – Biomedical Informatics Solutions for Drug Discovery in Biopharma. https://www.bioinfi.com/
Giving us freely this
908 published medical experts on Hereditary leiomyomatosis and renal cell cancer across 30 countries and 20 U.S. states, including 146 MDs.
It could be useful if you want to look up an HLRCC expert

Filed Under: Uncategorised

New YouTube Channel HLRCC Science

29th December 2021 By Graham

These lectures are all uploaded to the YouTube Channel HLRCC Science

Please click on the Channel Follow and Video Like Buttons

Lecture #1 Understanding How Genes Code for Proteins

 

Filed Under: Uncategorised

Advertising a new HLRCC Clinical Phase II Trial

30th May 2021 By Graham

Pamiparib and Temozolomide for the Treatment of Hereditary Leiomyomatosis and Renal Cell Cancer

Filed Under: Uncategorised

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VHL Alliance is a NORD member organization

Last modified: 5th February 2026 @ 2:38 pm
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