Advertising a new HLRCC Clinical Phase II Trial

30th May 2021 By Graham

Pamiparib and Temozolomide for the Treatment of Hereditary Leiomyomatosis and Renal Cell Cancer

Unique Tumor Repository Launched by UCLA

21st May 2021 By Graham

Unique Tumor Repository Launched by UCLA

They hope to use this information to increase their knowledge of HLRCC which could possibly lead to better prevention strategies, early diagnosis, and more effective treatment in the future. Patients can participate remotely (or in person) as long as consent is obtained.

You can find more information about the study at:

https://www.uclahealth.org/urology/iuo/hlrcc-repository-study

For more information, please contact:

Brian Shuch, MD

Shirin Zavoshi, MD

310-794-9493

kidneycancer@mednet.ucla.edu

Alex Dinh – Such a great story about Alex and his battle with Renal Cell Carcinoma!

9th March 2021 By Graham

Deborah Brackin is with Alex Dinh

Welcome to this upgraded website

7th April 2018 By Graham

Starting in January 2018 it was agreed that we would upgrade the hlrccinfo.org website to be smart phone friendly using WordPress. This upgrade was paid for by the VHL UK/Ireland charity. At the same time the domain name and web server was also transferred and paid for by the charity (previously funded by the VHL Alliance).